Rare Disease Day is an annual observance held on the last day of February to raise awareness for rare diseases and improve access to treatments and medical representation for individuals with rare diseases and their families.
Real people living with rare diseases share their experiences and what they wish others knew. Those with rare diagnoses and their families face a lot of unique challenges that may be difficult for others to understand.
Rare Disease UK (RDUK) is the national campaign for people with rare diseases and all who support them. We believe that everyone living with a rare disease should be able to receive high quality services, treatment and support.