The RARE List™ is comprised of approximately 7,000 different rare diseases and disorders affecting more than 300 million people worldwide.  This is a list of rare diseases defined in the United States where a prevalence of less than 200,000 cases is the primary criteria.

Rare Disease List broken down alphabetically, with links to organizations whenever possible. Nearly all 7000 or so rare diseases are on this list! Pudendal Neuralgia and Tarlov Cyst Disease.

Rare Disease Day is an annual observance held on the last day of February to raise awareness for rare diseases and improve access to treatments and medical representation for individuals with rare diseases and their families.

Rare Disease Day is an annual observance held on the last day of February to raise awareness for rare diseases and improve access to treatments and medical representation for individuals with rare diseases and their families.

Support RareDiseaseDay February28 and Wear Jeans! The last day of February is Rare Disease Day.

Support and Wear Jeans! The last day of February is Rare Disease Day. is a rare disease

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Statistics and Figures on Prevalence of Genetic and Rare Diseases Although rare and genetic diseases, and many times the symptoms, are uncommon to most doctors, rare diseases as a whole represent a…

***24 Things People With Rare Diseases Wish Others Understood

24 Things People With Rare Diseases Wish Others Understood

Real people living with rare diseases share their experiences and what they wish others knew. Those with rare diagnoses and their families face a lot of unique challenges that may be difficult for others to understand.

Meme Monday: Our Favorite Rare Disease Web Memes

There are many chronic fatigue syndrome symptoms, which vary depending on levels of stress, how often you exercise, and how well you eat.

Handprints Across America 2014 « Rare Disease Day USA - Feb. 28 - print a handout and post your photo

Rare Disease Day has grown each year thanks to the individuals who get involved. Learn more about the history of Rare Disease Day.

Shoutout for all those fighting invisible illnesses such as CRPS / RSD / EDS / Lyme / Lupus / CFS / Fibromyalgia

Shoutout for all those fighting invisible illnesses such as CRPS / RSD / EDS / Lyme / Lupus / CFS / Fibromyalgia / MS

Rare Disease Day: Now I'm Rare poster

Rare Disease Day: Now I’m Rare poster

#Craniopharyngioma is listed a rare disease (ORPHA Number 54595) via Orphanet's List of Rare Diseases  Synonyms October 2013. Orphanet is a consortium of around 40 countries, coordinated by the French INSERM team. Orphanet is the reference portal for information on rare diseases and orphan drugs, for all audiences. Orphanet’s aim is to help improve the diagnosis, care and treatment of patients with rare diseases.

The portal for rare diseases and orphan drugs

Rare Disease UK logo

Rare Disease UK (RDUK) is the national campaign for people with rare diseases and all who support them. We believe that everyone living with a rare disease should be able to receive high quality services, treatment and support.

Día Internacional de las Enfermedades Raras (28 de febrero)

Rare Disease Day 2013 - February For my bestest BIG boy now, Wyatt!

Global Genes Project - Leading Rare and Genetic Disease Non-Profit Organization - Building awareness and communities to support and find treatments for Rare Diseases and Genetic Conditions

Williams syndrome is a rare genetic disorder caused by the deletion of the long arm of chromosome A random genetic mutation (deletion of a small piece of chromosome rather than inheritance, …

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