Etsy Cart Nice choice, Karleen! Share your favorites on your Facebook Timeline. Learn more. August Recent Favorites CLOVES Syndrome Awareness Bracelet CLOVES Syndrome Awareness Bracelet KarleensIdeas $24.00 USD Try Now No thanks Connecting to Facebook will allow your friends to find you on Etsy. Home › KarleensIdeas › Awareness Jewelry Listing Tools Edit Promote Copy Stats
"Fibrodysplasia Ossificans Progressiva is a disease where the body’s repair mechanism is completely broken, and starts “healing” the fibrous tissue (muscles, tendons and ligaments) by turning them into bone. Your whole body is slowly being petrified. There’s no known treatment for the 450 sufferers worldwide, and in one famous case a sufferer survived up to the age 40, at which point his entire body, except his lips and transformed into bone, leaving him completely immobile."